Research & Collaboration Requests

The International Vanishing Twin Syndrome Foundation (IVTSF) welcomes inquiries from researchers, clinicians, educators, institutions, and advocacy organizations seeking to collaborate on projects or volunteer efforts aligned with our mission. For a comprehensive overview of the current evidence base, we invite you to explore the Vanishing Twins Syndrome (VTS) Literature Repository within our Knowledge Hub.

Our work centers on improving understanding, care, language, and support for individuals and families affected by vanishing twin syndrome and other forms of multiple loss. We are particularly interested in collaborations that:

• Advance ethical, trauma-informed research

• Center lived experience and survivor voice

• Improve clinical practice, education, or policy

• Expand global awareness and equity in care

• Translate evidence into practical tools and resources

If you are developing a study, educational initiative, creative project, program, or simply want to share information, we invite you to reach out.

All research-related requests are reviewed by the IVTSF Board of Directors and, where appropriate, members of our internal Research Advisory Group.

Please note:

• The IVTSF reviews all requests on a rolling basis

• You can expect an initial response within 2–4 weeks of submission

• Not all requests can be accommodated, particularly those requiring formal sponsorship, funding, or regulatory oversight beyond our scope

• When appropriate, we may suggest alternative pathways or forms of support

To submit a request, please email the following information to contact@vanishingtwinsyndrome.org:

• A brief description of your project or inquiry, including any IRB/ethics approvals and related documentation

• Your role and institutional affiliation (if applicable)

• The type of collaboration or assistance you are seeking

• Any relevant timelines or deadlines

• Contact information for follow-up