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Announcement: Check out the IVTSF's open volunteer positions!
The International Vanishing Twin Syndrome Foundation (IVTSF) provides research, education, and support for individuals and families affected by vanishing twin syndrome and other forms of multifetal loss.
Who are You?
Who are You?
Emotional support, educational resources, and guidance for navigating VTS and multifetal loss.
Clinical guidance, communication tools, and evidence-based resources for patient care.
Contribute to ongoing research, collaborate on advancing VTS knowledge, request parnership with the IVTSF, and access literature with the IVTSF Knowledge Hub (coming soon).
Consider volunteering with us.
Latest Announcements
Latest Announcements
Expanding Global Research Network
Expanding Global Research Network
The IVTSF continues to grow its international Research Advisory Group, welcoming leading experts in maternal–fetal medicine, genomics, and twin research. This expansion strengthens collaboration and advances global understanding of multifetal pregnancy outcomes.
New Initiatives in Clinical Care & Education
New Initiatives in Clinical Care & Education
The IVTSF is leading multiple initiatives, including a Delphi study to build clinical consensus on VTS, development of provider training resources, and a joint position paper with international partners to improve recognition and documentation of pregnancies that begin as multiples.
Global Terminology Update for Vanishing Twin Syndrome
Global Terminology Update for Vanishing Twin Syndrome
The IVTSF contributed to major updates in SNOMED CT, including a new formal definition of Vanishing Twin Syndrome and the addition of a concept to better document ongoing pregnancies following twin loss. These updates will be released internationally in June 2026 and improve how VTS is recognized in clinical care and research.
For many families, vanishing twin syndrome and other types of multifetal loss are experienced in silence. These losses are unrecognized, unexplained, and often unsupported.
Your support helps change that.
By donating to IVTSF, you are helping to bring visibility to multifetal loss, support families in their most vulnerable moments, and advance the research and clinical understanding needed to improve care.
Donors may also request account and routing information directly via contact@vanishingtwinsyndrome.org.
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