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Announcement: Check out the IVTSF's open volunteer positions!
The International Vanishing Twin Syndrome Foundation (IVTSF) recognizes that great things rarely happen alone. It takes teamwork to make the dream work. Please find our partners below in addition to other organizations and resources we proudly support.
Partners
Partners
ICOMBO is a global, voluntary organization that works to raise awareness of the unique needs of multiple birth individuals (infants, children, and adults) and their families, by promoting their health, education, and welfare. Since 1980, ICOMBO has been bringing together communities from around the world, with the common goal of improving the lives of twins, triplets, and more, and their families
The Butterfly Project is an initiative designed by a team of neonatologists and researchers to improve hospital recognition and support for families experiencing the loss of one or more babies in a multiple pregnancy. By using the purple butterfly symbols within maternity and neonatal units, the program helps healthcare providers communicate sensitively while acknowledging the surviving baby or babies and the family’s loss. The project also provides educational resources to support compassionate care and awareness among healthcare staff and the broader community.
PreemieWorld Foundation (PWF), Inc. seeks to create and curate equitable access of underserved populations to patient education, advocacy tools, and outcomes data specific to the preemie population.
Organizations and Resources Supported by the IVTSF
Organizations and Resources Supported by the IVTSF
In addition to our partners above, the following contain valuable resources for families of multiples, clinicians, researchers, and others. For more information on clinical guidelines, see the IVTSF Literature Repository.
Multiples of America (also known as the National Organization of Mothers of Twins Clubs) connects and supports families with twins, triplets, and higher-order multiples through education, resources, and community programs.
The International Society for Prenatal Diagnosis (ISPD) brings together professionals in genetics and fetal care to advance the science and practice of prenatal screening, diagnosis, and therapy worldwide.
The American College of Obstetricians and Gynecologists (ACOG) is a leading professional organization in the United States dedicated to improving women’s health through education, practice guidelines, advocacy, and support for obstetricians and gynecologists.
The International Federation of Gynecology and Obstetrics (FIGO) is a global organization representing obstetricians and gynecologists, working to improve women’s health and rights through advocacy, education, and international collaboration.
Chasing the Rainbows is a nonprofit offering free trauma-informed therapy with licensed professionals, peer support, and remembrance services to families impacted by infertility, miscarriage, stillbirth, and infant loss.
The International Society of Ultrasound in Obstetrics and Gynecology (ISUOG) promotes high-quality clinical practice, education, and research in ultrasound and imaging for obstetrics and gynecology across the globe.
The TAPS Support Foundation supports families and advances awareness of Twin Anemia Polycythemia Sequence (TAPS), providing education, resources, and international research collaboration.
Pregnancy Loss and Infant Death Alliance (PLIDA) is a professional and advocacy group dedicated to improving bereavement care through education, networking, and evidence-based practice for perinatal and neonatal loss.
Footprints Baby Loss is a UK-based charity that provides resources, remembrance, and community connection to families grieving the loss of twins, triplets, or higher-order multiples.
Return to Zero (RTZ) H.O.P.E. is a community of bereaved parents, families, and providers offering inclusive resources and holistic support for anyone whose life has been touched by loss, including infertility, secondary infertility, miscarriage, ending a wanted pregnancy, stillbirth, infant or toddler death, loss through surrogacy or failed adoption.
First Candle is a nonprofit that works to eliminate sudden infant death syndrome (SIDS) and other sleep-related infant deaths while providing bereavement support and resources to affected families.
The Skye High Foundation is dedicated to supporting families who have experienced the loss of a multiple through family fundraising opportunities and awareness initiatives.
TEARS Foundation provides emotional support, community, and financial assistance to families after the loss of a child.
Now I Lay Me Down to Sleep (NILMDTS) is a global nonprofit that mobilizes thousands of trained volunteer photographers and medical affiliates across more than 40 countries and has provided over 80,000 FREE remembrance photography sessions to families experiencing the loss of a baby in hospitals and care settings.
Interested in partnership or collaboration? Visit our Collaboration & Partnership Requests page.
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